Happy 8 Months to my beautiful boy!
A few things he is now doing a little.better than before.
Staying in a seated position
Grabbing at things
Attempting foods (puree)
'ba' sound
What we are working on: hand to mouth coordination (lots of trembling), dropping hips for all-fours position (he hates this and cries much!), texture sensitivity and gag reflex.
Upcoming Stuff:
Follow Up for Breathing Treatments
Follow Up G.I.
Follow Up Urology
9 Month Well-Check
Sunday, March 31, 2013
Sunday, March 17, 2013
Missing Pieces: Long Overdue Update
A few things I have forgotten to mention here, or have not updated on lately. Sorry, January-March was a really tough time for us medically speaking.
Medical Mumbo Jumbo
Silas caught a cold in January, around the time of his 6 month checkup. On February 2nd he was diagnosed with bacterial pneumonia. We did a round of antibiotics and checked back in with the Doc middle of the month. "It takes a few weeks for the cough to resolve" but his was still not better a month later, so we took him back again. They gave us breathing treatments, a second round of antibiotics, and a follow-up appointment in 4 weeks to discuss stopping the breathing treatments. So we are currently doing pulmicort twice a day and albuterol as needed. We finished the second round of antibiotics on Wednesday. Yesterday (Saturday) I forgot to give him his treatments and this morning he woke up sounding just as bad as before we began them. We go back early April to discuss all this. My gut says we may be doing treatments for a while, and that was something mentioned at the prescribing visit, that if he stopped them and sounded worse within a day or two, we might try doing them for 3, 4, or 6 months. Okay, I'm fine with that but my burning question is WHY is he having all this congestion. His pneumonia looks to be gone, so what is causing all this to stay in his system? No one else in the house has caught anything from him, so we know that he isn't just getting cold after cold. We have all been healthy except for that onset cold that we all had where his turned into pneumonia.
Another thing we haven't discussed (more because I am waiting on results than anything) on our blog is that Silas recently underwent a 72 hour EEG. I know I talked about the 15 minute one but after that we were still having activity looking stuff and I sent the videos to his neurologist who decided on the 72 hour EEG just to make sure we weren't missing anything with the short version. That came off on Thursday, still no results. The worst part about this particular EEG is that he now has little sores all over his head from the electrodes. They should clear, and we hope they don't scar. I'll be sure to post photos soon.
Food & Therapy
Silas has since our last post began his CDSA interventions. We LOVE our therapist! She comes out to the house once a week and works with us and the baby to get him moving and developing strength and abilities for his next milestone. She brings goodies for him too, toys he hasn't seen before, and swaps them out with others he is tired of. Our first goal we are working on is trying to introduce some food. This goal is honestly the one that scares me the most. Silas has done okay with it, but it is definitely not consistent. He still has a very sensitive gag reflex and so lots of what he tries comes back out at us, and yes that's fun getting all covered in baby slobber and food particles. So far we have tried real oatmeal mixed with breastmilk, mashed peas, green beans, broccoli, a taste of yogurt, and yesterday I let him gum on a cucumber slice. He has no teeth yet. He really seemed to enjoy sucking the life out of the cucumber. Most of what he tries is only a few bites and half of that doesn't stay in. We have had small luck with fruit puffs that dissolve in the mouth on occasion. He likes to play with his spoon and can get it to his mouth on his own, so I often put something on it and let him have it to play with and he seems to really enjoy this kind of early self-feeding. We only do this about once every other day, as it does seem to tire him out having to sit in the highchair. It also seems to increase his hand tremors (probably because he is developing a new set of muscles he hasn't needed before).
My daughters have had the chance to meet the therapist and they always ask when she is coming and if they will get to be there. They are really looking forward to activities they can do WITH their baby brother. We are incorporating signs for "eat," "more," "milk," "mommy," and "daddy" into our daily interactions. Loving that!
Well, I think that's all for now. I will try and post some photos soon on the blogs. I haven't done that lately. Have a great week and I will get better at doing this again very soon. Oh, for those of you wondering, I still have the caringbridge site but there is something going on there and I cannot get into it to update right now, which is why I am posting here and not there for the time being. Blessings, love and light :)
Medical Mumbo Jumbo
Silas caught a cold in January, around the time of his 6 month checkup. On February 2nd he was diagnosed with bacterial pneumonia. We did a round of antibiotics and checked back in with the Doc middle of the month. "It takes a few weeks for the cough to resolve" but his was still not better a month later, so we took him back again. They gave us breathing treatments, a second round of antibiotics, and a follow-up appointment in 4 weeks to discuss stopping the breathing treatments. So we are currently doing pulmicort twice a day and albuterol as needed. We finished the second round of antibiotics on Wednesday. Yesterday (Saturday) I forgot to give him his treatments and this morning he woke up sounding just as bad as before we began them. We go back early April to discuss all this. My gut says we may be doing treatments for a while, and that was something mentioned at the prescribing visit, that if he stopped them and sounded worse within a day or two, we might try doing them for 3, 4, or 6 months. Okay, I'm fine with that but my burning question is WHY is he having all this congestion. His pneumonia looks to be gone, so what is causing all this to stay in his system? No one else in the house has caught anything from him, so we know that he isn't just getting cold after cold. We have all been healthy except for that onset cold that we all had where his turned into pneumonia.
Another thing we haven't discussed (more because I am waiting on results than anything) on our blog is that Silas recently underwent a 72 hour EEG. I know I talked about the 15 minute one but after that we were still having activity looking stuff and I sent the videos to his neurologist who decided on the 72 hour EEG just to make sure we weren't missing anything with the short version. That came off on Thursday, still no results. The worst part about this particular EEG is that he now has little sores all over his head from the electrodes. They should clear, and we hope they don't scar. I'll be sure to post photos soon.
Food & Therapy
Silas has since our last post began his CDSA interventions. We LOVE our therapist! She comes out to the house once a week and works with us and the baby to get him moving and developing strength and abilities for his next milestone. She brings goodies for him too, toys he hasn't seen before, and swaps them out with others he is tired of. Our first goal we are working on is trying to introduce some food. This goal is honestly the one that scares me the most. Silas has done okay with it, but it is definitely not consistent. He still has a very sensitive gag reflex and so lots of what he tries comes back out at us, and yes that's fun getting all covered in baby slobber and food particles. So far we have tried real oatmeal mixed with breastmilk, mashed peas, green beans, broccoli, a taste of yogurt, and yesterday I let him gum on a cucumber slice. He has no teeth yet. He really seemed to enjoy sucking the life out of the cucumber. Most of what he tries is only a few bites and half of that doesn't stay in. We have had small luck with fruit puffs that dissolve in the mouth on occasion. He likes to play with his spoon and can get it to his mouth on his own, so I often put something on it and let him have it to play with and he seems to really enjoy this kind of early self-feeding. We only do this about once every other day, as it does seem to tire him out having to sit in the highchair. It also seems to increase his hand tremors (probably because he is developing a new set of muscles he hasn't needed before).
My daughters have had the chance to meet the therapist and they always ask when she is coming and if they will get to be there. They are really looking forward to activities they can do WITH their baby brother. We are incorporating signs for "eat," "more," "milk," "mommy," and "daddy" into our daily interactions. Loving that!
Well, I think that's all for now. I will try and post some photos soon on the blogs. I haven't done that lately. Have a great week and I will get better at doing this again very soon. Oh, for those of you wondering, I still have the caringbridge site but there is something going on there and I cannot get into it to update right now, which is why I am posting here and not there for the time being. Blessings, love and light :)
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